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Von Hippel-Lindau disease (VHL) research

Ein Projekt von Verein VHL betroffener Familien e.V.
in München, Deutschland

The aim of this project is to increase the awareness of Von Hippel-Lindau disease (VHL) and at the same time raise some money to at least marginally improve the funding of the research dedicated to this disease.

Jan Knabbe
Nachricht schreiben

Über das Projekt

People who have VHL disease may experience tumors and/or cysts in different parts of the body, including the brain, spine, eyes, kidneys, pancreas, adrenal glands, inner ears and reproductive tract.

VHL is a genetic condition effecting only 1 in 36,000 people.
A rare disease like VHL is barely known and gets only very limited research funding.

The aim of this project is to increase the awareness of Von Hippel-Lindau disease (VHL) and at the same time raise some money to at least marginally improve the funding of the research dedicated to this disease.