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Funded Von Hippel-Lindau disease (VHL) research

A project from Verein VHL betroffener Familien e.V.
in München, Germany

The aim of this project is to increase the awareness of Von Hippel-Lindau disease (VHL) and at the same time raise some money to at least marginally improve the funding of the research dedicated to this disease.

Jan Knabbe
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About this project

People who have VHL disease may experience tumors and/or cysts in different parts of the body, including the brain, spine, eyes, kidneys, pancreas, adrenal glands, inner ears and reproductive tract.

VHL is a genetic condition effecting only 1 in 36,000 people.
A rare disease like VHL is barely known and gets only very limited research funding.

The aim of this project is to increase the awareness of Von Hippel-Lindau disease (VHL) and at the same time raise some money to at least marginally improve the funding of the research dedicated to this disease.