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Supporting Dravet patients with studies on Dravet syndrome

    Dravet-Syndrom e.V.
    A project from Dravet-Syndrom e.V. in Frankfurt am Main, Germany
    Supporting Dravet patients and their families with studies on Dravet Syndrome to improve their everyday lives.

    Already 13 donations.
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    €202,161.95collected of €209,979
    96 %funded
    13donations
    The project cannot receive donations anymore.

    About this project

    Melanie from Dravet-Syndrom e.V. is responsible for this project
    We want to cure Dravet Syndrome.

    However, this is a long-term goal, since it is a genetically determined and particularly severe form of epilepsy, which often entails serious mental and physical limitations. Quick successes are not yet in sight.

    On the long journey, the Dravet kids, Dravet adults and their parents need support in everyday life.

    A particular challenge here is the frequently present resistance to therapy. Despite simultaneous administration of several anti-epileptic drugs, those affected by Dravet continue to have regular, often severe epileptic seizures and are exposed to the mostly strong side effects of these drugs. The side effects of the current medication options include cognitive, motor and organ-functional limitations.

    We would therefore like to continue to help with patient surveys and medical studies to make the situation in the families visible and to make their everyday's life easier. 

    Your donations will help to better understand the seizure situations and the life with the syndrome.  To develop recommendations for therapie together with doctors.

    Every euro counts! Thanks very much!

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