
Supporting Dravet patients with studies on Dravet syndrome
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About this project

However, this is a long-term goal, since it is a genetically determined and particularly severe form of epilepsy, which often entails serious mental and physical limitations. Quick successes are not yet in sight.
On the long journey, the Dravet kids, Dravet adults and their parents need support in everyday life.
A particular challenge here is the frequently present resistance to therapy. Despite simultaneous administration of several anti-epileptic drugs, those affected by Dravet continue to have regular, often severe epileptic seizures and are exposed to the mostly strong side effects of these drugs. The side effects of the current medication options include cognitive, motor and organ-functional limitations.
We would therefore like to continue to help with patient surveys and medical studies to make the situation in the families visible and to make their everyday's life easier.
Your donations will help to better understand the seizure situations and the life with the syndrome. To develop recommendations for therapie together with doctors.
Every euro counts! Thanks very much!
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