Deutscher Verband für Kavernome e.V.

About us

The German Cavernoma Association (Deutscher Verband für Kavernome e.V.) emerged from the "Information Portal for Cerebral Cavernomas", which has been in existence since 2014 and is well known and respected by those affected and in the medical community. As the first independent association in Germany for the rare disease CCM (Cerebral Cavernous Malformation), known as cavernomas in German, it is specifically committed to the interests of people with cavernomas and their relatives. The aim is to improve the situation of people with cavernomas in Germany, but also across borders in cooperation with the European Cavernoma Alliance. This includes information and education about everything related to the rare disease cavernoma, public relations work, support for research projects and a dedicated journal by and for cavernoma sufferers and by and for medical specialists specializing in cavernomas, as well as the promotion of exchange between cavernoma sufferers.