wird verwaltet von C. Gamroth (Kommunikation)
International Mito Patients is a network of national patient organizations involved in mitochondrial disease. Mitochondrial disease is a rare disease with a limited number of patients per country. The national patient organizations which are a member of IMP each are active and powerful in their own countries. By joining forces IMP can represent a large group of patients and as such be their voice on an international level.
International Mito Patients has the following mission:
TO INCREASE QUALITY OF LIFE FOR PEOPLE WITH MITOCHONDRIAL DISEASE BY FACILITATING CROSS-BORDER COOPERATION AND COLLABORATION AMONG NATIONAL PATIENTS'ORGANIZATIONS.
The objectives following from this mission are as follows:
To share best practices, information and knowledge, in order to: - promote early diagnosis; - develop appropriate care pathways; - clinically manage the disease;
To be an international bridge between patients, clinicians, scientists, industry and policy-makers;
To promote and advocate for speedy development of treatments and cure.
At this moment there are 11 full members of IMP. All are active national patient organizations representing patients and their families involved in mitochondrial disease. Together they form the voice for at least 6,000 mitochondrial patients worldwide. And this voice can only become stronger and louder once other organizations join IMP.