
Normal sweating - thats what we wish for our children
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About this project

The success of the drug is so far very promising. The twins Maarten and Linus were treated with ER004 in the mother's womb. ER004 was given to the nutrient of the mother. The gene defect has been largely remedied. Normally, affected ones can not sweat as described above. Maarten and Linus have shown in a sweating test that they can sweat like normal children. The parents are very happy. We hope now that the drug can be approved and so can help other affected children.
Apart from not sweating, the missing teeth are also a big problem. Even children need dentures and later implants. A tooth register is needed and to be set up. Also this needs money.
Furthermore, a vocal cord examination and a study of the hormone situation in affected women is urgently needed to learn more about this disease and to achieve many possible improvements for all those affected. These donations are also for all these studies.
Are you interested in further details? You are also welcome to come directly to me if you have any questions.
See also...: http://us1.campaign-archive1.com/?u=571bdcaf5eafd904edef118de&id=db0eed09bb&e=09047b8#awesomeshare
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