
CNM - together strong! for a cure for centronuclear myopathies
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About this project

CNM are very rare congenital muscle conditions. Often the patients are too weak to walk. Sometime they need respiratory aids and have to be fed by a feeding tube. Especially for those with MTM their life expectancy is terribly low (less than 10 years) . As these conditions are so rare hardly any public funding is spend in the research for a cure of CNM and before CNM - together strong no association in Germany represented the affected families.
Our goal is to
1) Give the families a voice
2) Share information about CNM, and
3) Support research to find a treatment or a cure for CNM.
More information on our association you can find on our website www.znm-zusammenstark.org and on facebook: https://www.facebook.com/znmstark
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