Workshop for young families with a child with Prader-Willi syndrome.

 

The Prader-Willi syndrome confronts families with significant challenges. This genetic, rare condition affects development and requires specialized care across many domains. New parents of a child with PWS often don't know how to navigate these unique challenges.

Our three-day workshop provides families with toddlers and babies with PWS the opportunity to gain comprehensive insights into the medical fundamentals of the syndrome and learn how to best support their infant. This includes aspects such as growth hormone therapy, nutritional management, as well as physiotherapy, speech therapy, and occupational therapy. The workshop also serves as a platform for connecting with other affected families and experts, aiming to build a supportive network and provide reassurance that they are not alone in this journey.

To make this project a reality, we rely on your financial support. Your donation helps us keep participation fees low and ensures that all interested families can attend, regardless of their financial situation.

Your support makes a tremendous difference for these families. Together, we can ensure that every child with Prader-Willi syndrome receives the best possible care and support they need.

Thank you very much for your generous assistance!