"We give a voice to people with ME/CFS and Post-Covid ME/CFS".
A project from Lost Voices Stiftung in Hannover, Germany
Die Lost Voices Stiftung setzt sich für Menschen ein, die an der neuroimmunologischen Erkrankung Myalgische Enzephalomyelitis ME/CFS oder Post-Covid ME/CFS erkrankt sind.
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About this project
N. Krüger from Lost Voices Stiftung is responsible for this project
Who are we?
We at the Lost Voices Foundation volunteer our time to help people suffering from the neuroimmunological disease ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome). The disease usually occurs as a result of infections (as well as corona infections). Everyone has probably heard the term "long" or "post-covid". Unfortunately, ME/CFS is very often the disease behind it.
Some of us are involved with the Lost Voices Foundation because of our own illness. Others support their daughter or son, (spouse) partner, friend or other relatives.
What do we do?
Especially people with a severe course of disease no longer have the strength to raise their voices and fight for better care and research. We stand up for these lost voices.
We educate about the disease and fight for more recognition. Our main concern is to enable access to health care for those affected and thus to sustainably improve their quality of life. Through our scholarship programme, we support young scientists who are researching ME/CFS and Post-Covid ME/CFS.
This is how you can help us:
With a donation of 10 € you can finance an information package for medical professionals. With a donation of 500 € per month you can finance a scholarship for young researchers.
(Our previous scholarship holders: https://lost-voices-stiftung.org/forschungsfoerderung/).
Your donation of 5,000 € can help the Foundation to take a big step towards the realisation of a Counselling and Information Centre (BiS) ME/CFS. Feel free to contact us to learn more about our work!
https://lost-voices-stiftung.org/ueber-uns-kontakt/
A few facts and figures:
Before the outbreak of the Corona pandemic, an estimated 250,000 people suffered from ME/CFS, of which about 40,000 were children and young people. The pandemic is expected to increase the number of people affected. International experts even fear that the number of adults with the disease could double. Further research is urgently needed.
The situation of those affected is catastrophic. There are still no specialised care centres in Germany to provide adequate medical care after the disease was recognised by the WHO in 1969.
The good news:
In recent years, there has been further progress in global research into the disease. With your donation, you give people with ME/CFS in Germany the chance to benefit in the future and contribute to the continuous expansion of research.
We at the Lost Voices Foundation volunteer our time to help people suffering from the neuroimmunological disease ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome). The disease usually occurs as a result of infections (as well as corona infections). Everyone has probably heard the term "long" or "post-covid". Unfortunately, ME/CFS is very often the disease behind it.
Some of us are involved with the Lost Voices Foundation because of our own illness. Others support their daughter or son, (spouse) partner, friend or other relatives.
What do we do?
Especially people with a severe course of disease no longer have the strength to raise their voices and fight for better care and research. We stand up for these lost voices.
We educate about the disease and fight for more recognition. Our main concern is to enable access to health care for those affected and thus to sustainably improve their quality of life. Through our scholarship programme, we support young scientists who are researching ME/CFS and Post-Covid ME/CFS.
This is how you can help us:
With a donation of 10 € you can finance an information package for medical professionals. With a donation of 500 € per month you can finance a scholarship for young researchers.
(Our previous scholarship holders: https://lost-voices-stiftung.org/forschungsfoerderung/).
Your donation of 5,000 € can help the Foundation to take a big step towards the realisation of a Counselling and Information Centre (BiS) ME/CFS. Feel free to contact us to learn more about our work!
https://lost-voices-stiftung.org/ueber-uns-kontakt/
A few facts and figures:
Before the outbreak of the Corona pandemic, an estimated 250,000 people suffered from ME/CFS, of which about 40,000 were children and young people. The pandemic is expected to increase the number of people affected. International experts even fear that the number of adults with the disease could double. Further research is urgently needed.
The situation of those affected is catastrophic. There are still no specialised care centres in Germany to provide adequate medical care after the disease was recognised by the WHO in 1969.
The good news:
In recent years, there has been further progress in global research into the disease. With your donation, you give people with ME/CFS in Germany the chance to benefit in the future and contribute to the continuous expansion of research.
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