Prader-Willi-Syndrom Vereinigung Deutschland e.V.

About us

The Prader-Willi Syndrome Association Germany (PWSVD) is a patient self-help organization uniting individuals with Prader-Willi Syndrome (PWS) and their families, boasting nearly 800 members nationwide. Founded in November 1991, our mission has been to raise public awareness and provide comprehensive information about PWS and its treatment options. We offer support and guidance for those seeking advice in all aspects of life and promote projects aimed at improving therapeutic measures. The primary goal of PWSVD is to enhance the lives of people with Prader-Willi Syndrome and their families. To achieve this, the association focuses on public outreach and offers a variety of support services. These include numerous workshops for relatives of individuals with PWS, as well as holiday camps and workshops specifically for those with PWS.

Further informations: www.prader-willi.de