Stiftung Lichterzellen

About us

Our foundation may be small, but it means a lot to people affected by PNH and aplastic anemia, especially because we are the only foundation in German speaking countries for these diseases. The rare, life-threatening diseases can affect anyone at any stage of life. Suddenly, hematopoiesis in the bone marrow fails, leading to an increased risk of bleeding, a drop in oxygen levels in the blood and an increase in the risk of infection - similar to leukemia.
Patients with AA and PNH often carry the burden of these diseases for the rest of their lives, and sadly, their fight ends fatally far too often. Life is characterized by physical complaints such as fatigue, pain and frequent infections, accompanied by countless visits to the doctor, which take up time and energy. Such a life changes abruptly and profoundly and often has to be organized around the disease. Our aim is to accompany and support patients and their families, to advance research and to educate the public. We want to inform and fight for a minority that deserves and receives our full attention and support.