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ZNM - zusammen stark! e. V.

managed by H. Fischer (Communication)

About us

We are the German association of myotubular myopathy (MTM) and other centronuclear myopathies (CNM).

CNM are very rare congenital muscle conditions. Often the patients are too weak to walk. Sometime they need respiratory aids and have to be fed by a feeding tube. Especially for those with MTM their life expectancy is terribly low (less than 10 years). As these conditions are so rare hardly any public funding is spend in the research for a cure of CNM and before CNM - together strong no association in Germany represented the affected families.


Our goal is to
1) Give the families a voice
2) Share information about CNM, and
3) Support research to find a treatment or a cure for CNM.

More information on our association you can find on our website www.znm-zusammenstark.org and on facebook: https://www.facebook.com/znmstark

Latest project news

Latest news

Ich habe 807,30 € Spendengelder erhalten

  H. Fischer  20 March 2018 at 04:15 PM

Liebe Spenderinnen und Spender,
heute kann ich über 800 € von betterplace auf unser Vereinskonto überweisen!
Vielen dank euch allen!
Wir werden damit die Forschung an zentronuklären Myopathien weiter unterstützen.
Auf unserer Homepage und auf Facebook werden wir berichten, welche Forschungsvorhaben und in welchen Kooperationen wir das genau tun.

Ihr helft uns, uns selbst zu helfen und gebt uns auf diese Weise so viel Hoffnung! Vielen dank dafür!
Zusammen sind wir stark!
Holger

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Contact

Käte-Hamburger-Weg 8
70569
Stuttgart
Germany

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H. Fischer

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