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ZNM - zusammen stark! e. V.

managed by H. Fischer (Communication)

About us

We are the German association of myotubular myopathy (MTM) and other centronuclear myopathies (CNM).

CNM are very rare congenital muscle conditions. Often the patients are too weak to walk. Sometime they need respiratory aids and have to be fed by a feeding tube. Especially for those with MTM their life expectancy is terribly low (less than 10 years). As these conditions are so rare hardly any public funding is spend in the research for a cure of CNM and before CNM - together strong no association in Germany represented the affected families.

Our goal is to
1) Give the families a voice
2) Share information about CNM, and
3) Support research to find a treatment or a cure for CNM.

More information on our association you can find on our website and on facebook:

Latest project news

Latest news

Ich habe 919,21 € Spendengelder erhalten

  H. Fischer  17 July 2018 at 04:23 PM

Vielen Dank an alle Spenderinnen und Spender, 
Gerade sind wir auf der europäischen Familienkonferenz #TogetherEvenStronger2018 in London.  Die Simultanübersetzung läuft und wird von ZNM-ZUSAMMEN STARK finanziert. Auch durch eure Spenden! Vielen Dank!

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