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Jennifer B.’s fundraising event

It is my birthday - surprise me with a donation

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What's it about?

Dear friends and family, for my birthday, the only thing I wish is to be able to help the children with myotubular myopathy (MTM), which was the condition that had my son Emil.

Emil was a happy child, who brought so much light to our lives. He unfortunately passed away last year, but he left us this very important mission! I would be more than happy, if you could make a small donation to the association ZNM - Zusammen Stark e.V. (CNM - Together Strong).

Together with other parents of children with MTM, Holger and I founded this association dedicated to inform the families with this disease and to look for a treatment for these precious children.

Here you can find more information about our association and Emil's life
http://www.znm-zusammenstark.org/en/
http://emil-augustin.blogspot.de/ 

Thank you very much for your kindness! 
Jen

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Jennifer B. announced this fundraising event on 23 November 2017.

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