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Dear friends and family, for my birthday, the only thing I wish is to be able to help the children with myotubular myopathy (MTM), which was the condition that had my son Emil.
Emil was a happy child, who brought so much light to our lives. He unfortunately passed away last year, but he left us this very important mission! I would be more than happy, if you could make a small donation to the association ZNM - Zusammen Stark e.V. (CNM - Together Strong).
Together with other parents of children with MTM, Holger and I founded this association dedicated to inform the families with this disease and to look for a treatment for these precious children.