Sissy's 25th birthday: Donations instead of gifts

Dear family and friends,

On February 11th is my 25th birthday :-) This year I have a special wish for birthday present!
There is nothing I miss, neither material stuff nor other personal gifts.
The only thing I would like is if you could support someone who needs to be heard! I would be really happy if you decided to support the children with myotubular myopathy (MTM) and other centronuclear myopathies (CNM) by making a donation to the association "CNM-together strong!"!

CNM are very rare congenital muscle conditions. Often the patients are too weak to walk. Sometime they need respiratory aids and have to be fed by a feeding tube. Especially for those with MTM their life expectancy is terribly low (less than 10 years) . As these conditions are so rare hardly any public funding is spend in the research for a cure of CNM and before CNM - together strong no association in Germany represented the affected families.

The goal of the association is to:
1) Give the affected families a voice
2) Share information about CNM, and
3) Support research to find a treatment or a cure for CNM.

There is no small donation! Every amount you are willing to give would be helpful so that the CNM association comes closer to its goals!

More information on the CNM association you can find on the website www.znm-zusammenstark.org and on facebook: https://www.facebook.com/znmstark

I use betterplace.org because:
Donating on betterplace.org is straightforward and secure. You can donate using Direct Debit, Credit Card, PayPal or giropay.

Thank you for your support and your good feelings,
Warm kisses and even warmer hugs!

Yours,
Sissy