managed by M. van Meel (Communication)
NephcEurope would like to organise a get together for families with tehir children suffering from Nephrotic Syndrome. This means that we would like to bring together patients from various countries together in order to present to them new intiatives on research and share their knowledge and ideas. The children will have workshops of various kinds of activities, creative, dance, etc. For them it is a day of joy whilst being ill chronically.