managed by Stefan
In our association, those affected and their relatives can exchange information about this very painful disease and share positive and negative experiences with doctors and therapists. We want to encourage others in the community not to give up hope and to take new courage in the fight against this extremely stressful disease. We want to strengthen the feeling of community and to be able to forget the burden and the pain when we are together. Millions of people worldwide are certainly affected by this terrible disease and the number of children affected is alarming. Unfortunately, the exact number of people suffering from CRPS is not known, but it is known that the number of unreported cases is far higher, as the disease is only recognised very late in many cases, or sometimes not at all. The fatal thing is that the consequences of non-treatment or incorrect treatment can lead to the loss of the ability to move the affected limbs.
Die Budapestkriterien werden öffentlicher gemacht und in Praxen und Kliniken ausgehangen und Ärzte über die diagnosemöglichkeiten informiert